Through its “Champions of Change” program, the White House honors individuals who are inspiring and empowering others in their community through extraordinary works.
Earlier this year, President Obama launched his Precision Medicine Initiative. The initiative enables a new era of medicine; focusing on research and technology that empower patients, researchers and providers to work together toward individualized treatments.
When we saw the program was accepting nominations in the Precision Medicine category, Marcia Boyle and the Immune Deficiency Foundation (IDF) came immediately to mind. The nominating committee agreed, naming Boyle as a recipient.
IDF’s ePHR is the embodiment of the President’s goals. Boyle spearheaded the effort to not only develop an electronic health record for patients, but one that would give users the option to have their data available for research purposes.
“I am grateful to Get Real Health for the nomination. It is such an honor to receive recognition at this level for work that truly is a labor of love,” says Boyle.
— Marcia Boyle (@Marciaidf) July 7, 2015
Boyle’s journey to the White House began when her son was diagnosed with a primary immune condition and she found herself without resources. Her frustration at the lack of information and assistance sowed the seeds for the founding of IDF; which now serves some quarter of a million Americans every day. Boyle joined eight other winners at the White House July 8th. The ceremony included remarks from Secretary of Health and Human Services Sylvia Mathews Burwell, Senior Advisor to the President Brian Deese and Director of National Institutes of Health Francis Collins.
Get Real Health was privileged to share in the moment as Christina Caraballo, Healthcare Strategist; Jennifer Dunphy, Clinical Expert and our President Robin Wiener attended the event. “We are thrilled that decision makers within the administration see the valuable tools that IDF is offering their patients,” says Wiener. “Additionally, we are so proud that a solution that we helped build, is truly helping people every day.”
— The White House OSTP (@whitehouseostp) July 8, 2015
— Sylvia Burwell (@SecBurwell) July 8, 2015