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Tag: IDF ePHR

Get Real Health Backs Immune Deficiency Foundation’s Request to Senate HELP Committee

August 19, 2015Christina Nash

Get Real Health has been a champion of the Blue Button initiative as its mission mirrors ours in that it allows patients to securely access electronic health information. What gets us excited is the Blue Button initiative’s goal for patients to not only access health information online, but also to aggregate health data from multiple…

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White House Honors Immune Deficiency Foundation President as a “Champion of Change” for Precision Medicine

July 10, 2015Christina Nash

Through its “Champions of Change” program, the White House honors individuals who are inspiring and empowering others in their community through extraordinary works. Earlier this year, President Obama launched his Precision Medicine Initiative. The initiative enables a new era of medicine; focusing on research and technology that empower patients, researchers and providers to work together…

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Client Spotlight: Immune Deficiency Foundation Gets Creative with Patient Recruitment

May 13, 2015Christina Nash

Patient portal recruitment and retention are common hurdles across the field of connected health. Our client and InstantPHR user, Immune Deficiency Foundation (IDF), has met this challenge head on. Through webinars, mailings, emails, social media updates as well as portal enhancements, content updates and incorporating user feedback, IDF has posted impressive usage numbers. More importantly,…

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